Hey there fellow Type 1 using CGM..
Bravo for taking on sailing.. Let me say that the Pump & CGM has been a great improvement in the management of my diabetes and certainly is a game
changer in long distance sailing..
What is below in this post is a personal opinion, not medical advice and based on my own experience as a type 1 pump/CGM user.. See your medic for an expert opinion..
So lessons learnt from taking 'sailing trips' as a Type 1 with Pumps/CGM.......
Supplies - I travel with 1.5 times the supplies typically needed when I am close to my local pharmacy and can drop in to get some. This is because there is no pharmacy off shore and you will have errors and failed recharges of the pump and new CGM sensors for many reasons including you losing your position applying the tech when the boat
pitches and rolls unexpectedly.. heat.... assume you will have problems with all the kit that are mitigated by using a fresh set of consumables..
Backup - Pens with a regular testing kit are my full system back up.. Again 1.5 times the stock typically needed and a full replacement supply to the pump... if it goes an hour out on a trip leaving a place that doesn't carry that version you are fecked.. ;-)
Make, model etc.. - Assume that where you are traveling in won't have the make or model of your supplies.. In some of the less well off places they will have basic insulin.. CGM and Pumps are latest tech and more than likely they wont have your setup or any version in those places unfortunately
Training - Train your main on board medic in the pump and CGM and the rest of the crew if they will work
it if you are ill.. On a recent transat there were 3 of us. 2 Type 1s with CGMs.. When the other Type 1 got ill I was able to refer to the CGM and check her blood sugar level without needing to wake her up which helped her to recover. I could also see if she was going too low and wake her up to give her food
. CGM is a game
changer for sailors care and well being.
In humid climates I've found the adhesive
strips for securing the CGM sensors fail or don't last as long as they would in colder climates. You will use up a lot of these to keep the Sensor on you. Sensors seem to give more errors when being setup in warm climates hence the need for extra stock..
I've found that the insulin goes off if not refrigerated. So if you are carry that stock of Pens and vials keep an eye on them when the fridge is being shuffled for the next dinner.... Educate the crew to look after the container and the emergency
Meter - I use a lanyard with a pouch to hang the pump off my shoulder but across my chest so I can unzip and do a quick look see for my sugar level. I do not use it on a belt on my hip or under the arm. Snug against my sternum protects it and enables full movement even in hairy situations.. It also wont obstruct the life jacket activation or cause a painful pressure against the body..
Keep an eye to the pump getting too hot in your clothing
as it has temperature performance ranges. Test strips are in my opinion to be questioned in hot climates.... if you think the test result looks off to how you feel then test a few times..
Being straight about it ....managing your diabetes at sea is a challenge no more so when you have precision medical devices such as CGM and pumps involved. They are a great help but healthy criticism of the insights they provide is needed..
You need to practice a method for recharging the pump, test, replacing your sensor in difficult situations..
A salty environment
is no friend to ICs so keep the devices dry and well protected..
If you are hypo unaware be aware. Set the alarm
level at it highest so you will wake up or someone will hear it above the roar of the weather
I am really pleased to hear the philosophy explained here of not letting diabetes get in the way of leading a full life.. Once I got over the shock and denial of having diabetes in my mid 30s it was this approach that allowed me to make a good run at life..
Last idea.. I setup a private battery
isolated from the service
and engine battery
with its own cigarette lighter connection.. This was done to ensure a pvt. medical power supply on the boat.. I had a friend who had sleep apnia (not spelt right) who needed to use a breathing machine when sleeping on a recent crossing.. He plugged it into the connection and slept like a baby for his 4 hours.. the battery would recharge on the boat systems and be ready to go for the next time..
Fair winds and if you want to chat 121 please pvt. message me..