Originally Posted by avb3
Disagree if you want, but please, let's do it with some respect. Or don't read his posts. I believe there is an "ignore" button somewhere, as I am pretty sure I have used it on one or two in the past.
I think its a "talent"... and yea, I havent told any haters to "F off" because, well, "Fing off" is one of the greatest joys in my life, and I've always thought telling someone to do so was a strange way to insult them.
Ok, since this thread has veered and backed all around the compass
rose, I'm going to throw this little gem out there for anyone reading this who thinks they are "burdened" by a child who has special needs.
Its hard to imagine any condition more horrific than what this family
had to deal with:
"So my parents were told to grieve on the day that they were supposed to be celebrating. They were told to grieve for one of two things: either the loss of their baby or the loss of a normal baby, because they weren’t going to have a normal baby. They told them at birth I had a rare condition that, if I even got to live, my bones would fracture for little or no apparent reason and I would be stunted in growth and be of short stature my entire life, if I even got to live. So, that’s a lot to put on a human being, especially when they’re supposed to be celebrating and so my parents made a decision at a very critical period of their life: that this condition was not going to consume my life, it was not going to take me out of this world and if there was anything they could do to expose me to the world in a positive, uplifting, human manner they would. And they have!"
That's a quote from an amazing human being that I had the good fortune and honor to meet a while back.
His name is Sean Stephenson, and he was born with a rare bone disorder called "osteogenisis imperfecta" or "brittle bone disease".
Sean is in a wheelchair because he suffered over 200 bone fractures before he was 18. He is 3 feet tall. He was not expected to survive his childhood - which was unimaginably painful due to his disease.
"Yeah, so kids
dress up. And there was only one thing I really wanted in life more than anything as a child was to be able to blend in and be normal and just like everybody else, which is the opposite of what most kids
want. They want to stand out and be different. So there was one day of the year that I got to do that, and that was Halloween. All the kids got dressed up and nobody stared at me. So I loved Halloween. I was in my costume, and I was rolling around in the living room. I caught my left leg on the corner of the door. I bent it back and snapped the femur bone, the large thigh bone.
I knew I had four to six weeks to heal. I wouldn’t be able to go to school
and show my costume off, eat the candy, be with my friends, be at the party, trick or treat, or do all of those fun things that I look forward to every year. And I was so angry I started screaming out, ‘Why me? What did I ever do to deserve this?’
My mom came running into the room, and she knelt down beside me, And she ran her fingers through my hair to calm me down. We would play this little game
every time I would break a bone, It was ‘What was your favorite part about our last vacation
?’ ( to take his mind off the pain) Except, that day I was so angry I didn’t want to play any more games.
My mom saw that in my eyes. So, she formulated a question, that changed the course of my life. She said,
‘Sean is this going to be a gift or a burden in your life?’
"And, before I could tell her she was crazy, something magical happened, something mystical, something that I can’t explain with science. It was like this warm wind
of wisdom just surrounded my body and I got clarity in fourth grade for the purpose to my life. The purpose to my life that I realized so young, at the tender
age of 10-years-old or 11, whatever you are when you’re in fourth grade, is that everybody goes through pain. Everybody fractures. Just not with their bones. And I seemed to love my life amidst the fractures. God put me in this package to be fragile on the outside with the skeletal system so that I could help those that were fragile on the inside in their spirit. And, my purpose was to teach others how to love their life amidst their pain."
And Sean has gone on to overcome the unimaginable barriers his condition brought.
He lives a life of travel, adventure, and service
He served in the Clinton Whitehouse, works as a motivational speaker and psychotherapist. He has written 4 books
, done stand-up comedy, and is a world class ladies man, with a very full and vibrant social life. He hangs out with guys like Richard Branson and Anthony Robbins - guys who look up to him, even though he's just 3 feet tall.
A 3 foot tall giant.
So - how do you view the adversity in your life?
Do you really think you have it harder than Sean?
If you have a child, do you love, support, spend time with, and encourage them, or do you farm that stuff out to therapists, nannies, and schools because you have more important things to do?
Do you see yourself as a victim crushed by cruel circumstance or a hero who triumphs against all odds?
Either way, you're right.