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Old 16-01-2018, 21:16   #16
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Re: A hiccup in our plans - congestive heart failure

I have been treating sole atrial fibrillation whilst cruising for about the last six years whilst cruising by myself.

I occasionally worry that I will have serious health problems whilst in a remote area and for that reason don't have any pets.

I have a good doctor who understands that my cruising life style is good for my mental and physical health. He practices in a city at the northern terminus of my annual winter cruise and I have an annual medical there whilst waiting for the prevailing winds to shift northerly.

I also have hypothyroidism which I take medication for an about every six months the doctor calls and reminds me that another blood test is required. I inform his receptionist of the fax number for the nearest pathology lab and they fax a prescription to the lab for me to have the test.

When he receives the results the doctor will call and adjust dosages over the phone.

I also call them for prescription renewals and we use a similar procedure for the renewal of drug prescriptions. Sort of keeps them informed that I have not fallen off the perch and they can expect to see me on my next cruise.

Having a good relationship with your doctor, making sure the anchor is well dug in when you anchor, staying away from cold climates, listening to a weather report every day and avoiding bad weather, and staying the hell away from lawyers appears to be the best way forward. A touch of fatalism and following Ronny's advice to "don't worry, be happy" also seems to help.

I am seventy three and hope to be still cruising with my health problems until at least eighty five.
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Old 17-01-2018, 05:47   #17
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Re: A hiccup in our plans - congestive heart failure

I'm one of your brothers in the bond. I often sail singlehandedly. Sailing, and its associated diet, has been an easy and direct path to greatly better fitness. My thought for your consideration would be this, do you sit and wait in your same TV and easy chair for a health to come to you, or, might you get up, turn your back on the old ways, and come sailing. The change for myself has been dramatic and I'm a happy person. Thank you for your posting. I hope to see you on the water soon.
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Old 17-01-2018, 09:30   #18
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Re: A hiccup in our plans - congestive heart failure

Three heart surgeries later and still ticking at 57. Several of my relatives kicked the bucket around 50 so I come by this genetically to a certain extent. I have always worked out running, biking, weight lifting. Never smoked. Drink very little, usually on holidays. I've had some pretty dark days, but the best advice I ever got was to walk. Physically and emotionally walking really helped me. I'd go sailing if I were you. As for me, I'm planning my next ski vacation and which motorcycle race I'm gonna race in. There's no guarantees in this life. Might as well live it.
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Old 19-01-2018, 09:55   #19
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Re: A hiccup in our plans - congestive heart failure

After all the medical talk...

I deal with several medical issues but travel extensively, not yet cut the lines but am already sorting between these issues. I lived in Africa for five years where health care was minimal and good health care was a five hour plane ride. I had a heart rate of 30 and was told to go home and lay on the couch until it got better!

SO what I have found is contingency plans, taking things in small steps and fore planning are the best. Always know where you can get help or how you can get out of there quickly. I went to the hospital on La Digue in the Seychelles while we were cruising there. I was the only patient. I got fabulous service. Luckily that was just a quick couple of hour visit.

So I take a stock of emergency meds, Have my docs personal cell, and always have a way out.
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Old 25-02-2018, 23:15   #20
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Smile Re: A hiccup in our plans - congestive heart failure

Quote:
Originally Posted by J Clark H356 View Post
I started taking an over the counter, $40 per month drug and in 3 months my EF went from 15-20 to 30-35. That was in 2002.
As someone who also has CHF and a low-ish EF and is wondering if it's too low to take the risk, I would be fascinated to know which over the counter drug helped your EF increase by that much. CoQ10? Vit D3?

Thanks!
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Old 26-02-2018, 02:54   #21
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Re: A hiccup in our plans - congestive heart failure

Greetings and welcome aboard the CF, Lunesdale.
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Old 26-02-2018, 06:10   #22
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A hiccup in our plans - congestive heart failure

First, I want to let you know I’m an Architect, not a Cardiologist, but my Internist recommended this drug. It is called Corvalen. It worked for me. I took it for several years and after I became stable in the 30-35 range, I decided to stop and see if there was any impact. I have not declined since, so now I have it in “reserve” for when I may need it in the future.

Google “Corvalen”. You’ll find lots of places to buy it. I did a Power with a tablespoon in the morning and in the evening mixed with water. Very little taste, slightly sweet.
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Old 27-02-2018, 14:32   #23
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Re: A hiccup in our plans - congestive heart failure

Ahh! - that's plain old D-Ribose!

Thanks very much, I shall order some and see how the EF on my next echo in June compares.

For those who have CHF/reduced EF and don't already use them, the other two (Coenzyme Q10 and vitamin D3) are also very helpful in increasing EF and energy levels and have had very good medical trials (the Vitamin D3 trial was run by Leeds University, at Leeds Hospital, UK - average EF went up from 26% to 34% in a year; ventricular remodelling also reversed). Strange they're not prescribed along with the standard heart drugs.

In particular, it seems it's well known (from research) that both statins and beta blockers reduce the body's production of CoQ10, which, like D-Ribose, is important in energy production in cells and so cell/muscle (heart) function. People with CHF have lower levels (maybe due to taking beta blockers and statins?) and the body's production also decreases with age.

Here's the easy-read intro for the vitamin D3 study:

http://pumpingmarvellous.org/effects...heart-failure/

Quantities used in the trials:

Vit D3: 1x 4,000 IU capsule per day
CoQ10: 3x 100mg capsules/day

Both widely available.

I've noticed a very definite and significant change/improvement in how I feel over the last 2 months I've been taking them. I won't be climbing Helvellyn anytime soon (EF is still low-ish) but otherwise I'm beginning to feel almost as good ('normal') as I did before the HA happened. And that's after a year taking the standard drugs when I didn't feel like 'normal' at all, quite the opposite.

Anyway, not sure how much medical talk is allowed on a cruising forum!

Thanks again!
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Old 28-02-2018, 05:44   #24
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Re: A hiccup in our plans - congestive heart failure

Let us know how you do. Hope it improves your health.
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